Usually, death occurs during or right after a seizure, but it can occur without a seizure.
The condition is not well-understood.
This article will discuss SUDEP, its possible causes, and some things that may reduce the risk.
shapecharge / Getty Images
shapecharge / Getty Images
What Is SUDEP?
SUDEP describes the death of a person withepilepsywhen no other cause can be determined.
What Causes SUDEP?
An exact cause of SUDEP has not been established.
Why it happens is not well-understood, but researchers have identified some possible reasons.
Breathing
Seizures can causeapnea(temporarily stopping breathing).
This could cause dangerous changes in breathing and heart rate.
Heart Rhythm
While rare, a seizure can cause a dangerous heart rhythm or cardiac arrest.
Researchers are also exploring other possible causes they haven’t identified yet.
A person who is asleep may also be less likely to respond to and correct breathing difficulties.
Children who have uncontrolled epilepsy or who experience frequent seizures are at the highest risk.
This punch in of seizure requires steps in addition to the general guidelines for seizure.
Some questions you may want to ask your healthcare provider include:
This discussion may take some time.
Summary
SUDEP is the death of an otherwise healthy person withepilepsywhen no other cause can be determined.
The exact cause of SUDEP is not known.
Frequent and/or uncontrolled general convulsive seizures appear to be the biggest risk factor for SUDEP.
SUDEP can’t always be prevented, but making sure seizures are under control may reduce the risk.
It’s also important for friends and family to know how to perform seizure first aid.
Talking to your healthcare provider can help youfeel well-informedand may bring you some peace of mind.
This number is increased for people with epilepsy whose seizures are not controlled.
If you think they might be beneficial to you or a loved one, talk to your healthcare provider.
Some studies suggest genetic factors are involved in SUDEP, but more research is needed.
Centers for Disease Control and Prevention.Sudden unexpected death in epilepsy.
2016;87(4):402-413. doi:10.1136/jnnp-2013-307442
Centers For Disease Control and Prevention.Sudden unexpected death in epilepsy.
2022;16:983211. doi:10.3389/fncir.2022.983211
SUDEP Action.What is SUDEP?
SUDEP Action.Risk in childhood & adolescence.
American Academy of Pediatrics.Sudden unexpected death in epilepsy (SUDEP).
Epilepsy Foundation.Can getting good care of my epilepsy prevent SUDEP?
American Academy of Pediatrics.Why it matters to talk about sudden unexpected death in epilepsy.
Centers For Disease Control and Prevention.First aid for seizures.
Epilepsy Foundation.Talking to your doctor about SUDEP.
