While uncommon, it is possible to be diagnosed withALS(amyotrophic lateral sclerosis) when you arepregnant.
This article provides an overview of ALS and pregnancy.
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ALS is aprogressive disease, which means that it gets significantly worse over time.
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It is extremely rare to develop ALS during the reproductive years.
The disease does not affect a persons reproductive, bowel, or bladder functions.
It does not appear to impact a personsfertilityor ability to become pregnant.
Is ALS Hereditary?
Certain types of ALS are considered hereditary.
The birth outcomes for babies of parents with ALS are usually good.
Risks
Being pregnant when you have ALS comes with serious health risks.
However, its important to note that the baby is not at increased risk of poor birth outcomes.
The most important risk to address is breathing problems.
Pregnancy adds to the lungs workload.
Because ALS causes muscle weakness and atrophy, the respiratory muscles will eventually be affected.
As the baby grows, the uterus presses on the diaphragm, making breathing more difficult.
This can causeshortness of breathto worsen.
For this reason, pregnant people with ALS require frequent monitoring and lung function tests.
People with ALS eventually lose the ability to chew and feed themselves.
Treatment
It is important to continue to receive ALS treatment during pregnancy.
It may also lead to liver problems.Talk with your healthcare provider about monitoring while taking this medication.
Concerning Symptoms
With ALS, your symptoms will change over time.
Pregnancy can exacerbate breathing problems, so you and your loved ones must monitor any health changes closely.
Both parent and baby are typically expected to do well throughout labor and birth.
Breastfeeding
It is possible tobreastfeedwhen you have ALS, and lactation is not affected by the disease.
However, breastfeeding with ALS comes with unique challenges.
If you experience pain or need to stop, tell the person assisting you immediately.
Summary
While it is very rare, it is possible to become pregnant when you have ALS.
It is also possible to be diagnosed with ALS during your pregnancy.
About 5% to 10% of ALS cases are considered genetic.
People with ALS need to participate in genetic counseling before becoming pregnant.
During pregnancy, people with ALS are at an increased risk of breathing problems.
Regular follow-ups with your ALS medical team and obstetrician are vital.
A Word From Verywell
ALS is a devastating diagnosis, and there is no cure.
While this is very rare, know that you are not alone.
Start by reaching out for support from your medical team, family, friends, and community.
Meeting with a support group or therapist may also be helpful.
Frequently Asked Questions
Yes, a person with ALS can become pregnant.
However, becoming pregnant with ALS is very rare.
It is possible to breastfeed when you have ALS, and lactation is not affected by the disease.
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ALS Association.Is ALS genetic?.
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