And although not all brain tumors are life-threatening, it is a life-altering experience, even if you recover.
But not every support group has the same exact features.
We’ve chosen a few brain tumor support groups to help you throughout your treatment and beyond.
Education includes online information about brain tumors, as well as webinars that provide updates on research and treatment.
In-person gatherings include activities such as local golf, running, and walking events.
Children and families may need lasting support and direction when learning how to manage these complex issues.
The community welcomes member suggestions for venues and activities.
The support group’s focus is a free service that helps patients navigate treatment options.
Meningioma Mommas
Meningiomas are the most common, primary brain tumor jot down.
While these tumors often have a good prognosis, surgery is the most common treatment.
Meningioma Mommasconnects patients who are newly diagnosed with a meningioma and meningioma survivors through an onlineFacebook support group.
Meningioma Mommas also works to raise awareness about meningiomas and the importance of meningioma research.
The community also works hard on fundraising initiatives for meningioma-specific research.
Funds are raised through contributions as well as events, such as walks and runs.
This international non-profit organization is for patients with pituitary tumors, as well as their loved ones.
The Pituitary internet Association addresses these needs with self-help groups, support groups, and education.
They also have an online library for members filled with helpful information, plus ongoing webinars to attend.
The option is available to participate in any or all of the formats for support.
These discussions are rated based on their level of usefulness.
There’s also a private group for closed discussions with members.
The Neurofibromatosis online grid also includeslocal branchesandFacebook groups.
The community offerseventsfor patients of all ages, including concerts and opportunities to join advocacy groups or awareness campaigns.
Resources for childrens activities, such as camps for kids who have NF, are also available.
Generally, they are funded by donations and run as nonprofit businesses.
They provide information, connections, and networking.
Generally, they’re focused around a mission.
That mission may be about connecting people, raising awareness, providing information, or raising money.
There are usually paid administrations or staff and a level of advisory oversight.
Volunteers can be a large part of running projects, too.
Some of them have a fundraising arm, and you will likely be asked to make a contribution.
You might receive requests for donations by email or phone or in-person when you attend events.
American Association of Neurological Surgeons.Meningiomas.
American Cancer Society.Living as a pituitary tumor survivor.
National Human Genome Research Institute.About neurofibromatosis.
