Understanding Infantile Spasms
West syndrome is aseizuredisorder (a form ofepilepsy) that begins in infancy.
It is often triggered by brain damage due to trauma or illness.
Symptoms
West syndrome most commonly begins in babies 4 to 8 months of age.
Verywell / JR Bee
Symptoms of West syndrome include:
Other symptoms may be present because of the underlying disorder causing West syndrome.
Other neurological disorders, such ascerebral palsyand autism, may also be present.
Causes
Almost any condition that can cause brain damage can cause West syndrome.
The diagnostic process includes a thorough neurological examination to look for possible causes.
Early diagnosis is important.
This throw in of surgery is performed commonly for several types of epilepsy and generally has good outcomes.
Infantile spasms usually go away by mid-childhood.
Coping
Dealing with a serious illness in a child can be difficult on many levels.
Remember that the best thing for your child is a caretaker who is at his or her best.
These coping strategies can help.
Emotional Challenges
Your child will need special care, which can be daunting and physically exhausting.
This is all a normal.
You, as a caregiver, need to ensure that you have breaks and can practice self-care.
Financial Issues
You may also have concerns about paying for your baby’s medical care.
Check with your insurance company to see what is and isn’t covered.
Check with social services agencies about Medicaid or other state insurance options.
That can still happenit just might not look like you expected.
Learn about your child’s needs, advocate for their care, and simply love them.
2015 Feb;25:68-71. doi:10.1016/j.seizure.2015.01.001
National Institute of Neurological Disorders and Stroke 2019.NINDS Infantile Spasms Information Page.